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Searching for secondary findings: considering actionability and preserving the right not to know

Bertrand Isidor 1 Sophie Julia 2 Pascale Saugier-Veber 3 Paul-Loup Weil-Dubuc 4 Stephane Bezieau 5 Eric Bieth 2 Jean-Paul Bonnefont 6 Arnold Munnich 6 Franck Bourdeaut 7 Catherine Bourgain 8 Nicolas Chassaing 9 Nadège Corradini 10 Damien Haye 11 Julie Plaisancié 12 Delphine Dupin-Deguine 2 Patrick Calvas 9 Cyril Mignot 13 Benjamin Cogné 5 Sylvie Manouvrier 14 Laurent Pasquier 15 Delphine Héron 16 Kym Boycott 17 Mauro Turrini 18 Danya Vears 19, 20, 21 Mathilde Nizon 1 Marie Vincent 5
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https://hal.archives-ouvertes.fr/hal-02904506
Contributor : Nathalie Porchet Connect in order to contact the contributor
Submitted on : Tuesday, January 18, 2022 - 11:26:41 AM
Last modification on : Friday, April 29, 2022 - 10:13:01 AM

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Bertrand Isidor, Sophie Julia, Pascale Saugier-Veber, Paul-Loup Weil-Dubuc, Stephane Bezieau, et al.. Searching for secondary findings: considering actionability and preserving the right not to know. European Journal of Human Genetics, Nature Publishing Group, 2019, 27 (10), pp.1481-1484. ⟨10.1038/s41431-019-0438-x⟩. ⟨hal-02904506⟩

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